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Disconnect between primary care and cancer follow-up care: An exploratory study from Odisha, India
  1. Sanghamitra Pati1,
  2. Sukdev Nayak2,3 and
  3. David Weller4
  1. 1.Indian Institute of Public Health Bhubaneswar, Public Health Foundation of India,, 2nd and 3rd Floor, JSS Software Technology Park, E1/1, Infocity Road, Patia, Bhubaneswar 751024, Odisha, India
  2. 2.All India Institute of Medical Sciences, Sijua, Bhubaneswar 751019, Odisha, India
  3. 3.Ex-Director, Regional Cancer Center, University of Edinburgh, Cuttack, Odisha, India
  4. 4.Centre for Population Health Sciences, Doorway 1, Medical Quad Teviot Place, Edinburgh EH8 9DX, UK
  1. Corresponding Author: Sanghamitra Pati Additional Professor, Indian Institute of Public Health Bhubaneswar, Public Health Foundation of India, 2nd and 3rd Floor, JSS Software Technology Park, E1/1, Infocity Road, Patia, Bhubaneswar 751024, Odisha, India E-mail: sanghamitra.pati{at}iiphb.org, drsanghamitra12{at}gmail.com

Abstract

Objective There has been a steady increase in the demand for cancer follow-up care in India. Compared with Western countries, there is little evidence on the capacity of the Indian primary care workforce to accommodate such tasks. We explored the perceptions of oncologists, general practitioners, and patients with regard to the involvement of primary care in cancer follow-up care.

Methods We undertook semistructured focus-group discussions with eight oncologists, nine general practitioners, and 17 cancer patients to gain an understanding of their perceived roles and responsibilities with regard to primary care in delivering follow-up care and the potential concerns. Data from the focus groups were transcribed verbatim, translated, and analyzed with use of a thematic approach.

Results Most general practitioners felt that their job is to see ‘normal’ patients, and cancer patients were exceptions to routine care. Oncologists were apprehensive with regard to the competence of general practitioners and patient trust. Patients consult oncologists for cancer follow-up care as they perceive it to be very specialized. Patients expressed difficulty in accessing follow-up care and want specialized oncological care by trained personnel in their vicinity.

Conclusion Despite the growing number of cancer survivors, we found a disconnect between primary care and cancer follow-up care.

  • Primary care
  • cancer follow-up
  • general practitioner
  • qualitative perspectives
  • Odisha
  • India

This is an open-access article distributed under the terms of the Creative Commons Attribution 4.0 Unported License (CC BY-NC 4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. See https://creativecommons.org/licenses/by-nc/4.0/.

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